A tri-national network diagnosing and improving quality of life of patients with rare diseases

RARENET is a French-German-Swiss cross-border cooperative project. His first objective is to improve the management and health of patients with complex rare diseases. Bringing together reference centres for rare diseases, universities, research centres, and patient support groups, RARENET offers a platform for the education and interaction by directly linking clinical treatment to the needs of patients. It provides resources such as patient information sheets, seminars, and training sessions for a greater level of information for health professionals and the general public.
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Oro-dental rare diseases and rare autoimmune diseases

In Europe a disease is defined as rare when it affects fewer than 1 in 2,000 people, however in total several million people are affected by rare diseases. The RARENET network brings together researchers, heath professionals, and patient support groups. Together RARENET concentrates on two types of diseases: rare diseases causing oro-dental anomalies (alterations in the number, shape, size, structure, eruption, and/or resorption of teeth) and auto-immune diseases including lupus (frequently affecting young women) or vasculitis, an inflammation of blood vessel walls.
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Recent news

10 07, 2018

Let’s draw the Future!

RARENET Project improvements

The event “Let’s draw the future!” dedicated to the improvements of the project RARENET, took place at Strasbourg University Faculty of Dental Surgery, July 5th and 6th, 2018. It was divided into three main times:

  • A first symposium dedicated to neural crests, which was organised in partnership [...]
15 06, 2018

Cleft Lip and Cleft Palate Day

“My child born with a cleft lip and palate” took place June 14th 2018. This information day was fully dedicated to cleft lip and cleft palate, a rare disease that results in a lip and palate deformity.

The event was organised by professors Bruno Grollemund and Delphine Wagner, both orthodontists [...]

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