A tri-national network diagnosing and improving quality of life of patients with rare diseases

RARENET is a French-German-Swiss cross border cooperation project. His first objective is to improve the management and health of patients with complex or rare diseases. Bringing together reference centres for rare diseases, universities, research centers and patient support groups, RARENET offers a platform for education and interaction directly linking clinical treatment to the needs of patients. It provides resources such as an app, patient information sheets, seminars and training sessions for a large awarness of health professionals and general public.
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Oro-dental rare diseases and rare autoimmune diseases

In Europe a disease is defined as rare when it affects fewer than 1 in 2 000 people, however several million people are affected. The RARENET network brings together reseacrhes, heath professionals and patient support groups. Together they work on two types of diseases: oro-dental anomalies caused by rare diseases  and which concern the number, shape, size, structure and the eruption or resorption of teeth and auto-immune diseases such as lupus which affects most young women or vasculitis, an inflammation of blood vessel walls.
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Recent news

18 11, 2016

Photos de la Fête de la Science 2016

RARENET était présent à la médiathèque Malraux de Strasbourg du 13 au 15 octobre pour la Fête de la Science et a accueilli près de 300 visiteurs !

18 11, 2016

Symposium Décembre 2016

Un premier symposium à Strasbourg en décembre

Il reste encore quelques jours pour s’inscrire au premier symposium consacré aux maladies auto-immunes rares et vascularites et aux agénésies dentaires multiples en présence de conférenciers internationaux. Il se déroulera les 7 et 8 décembre 2016 dans les locaux de la Faculté de [...]

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