A tri-national network diagnosing and improving quality of life of patients with rare diseases

RARENET is a French-German-Swiss cross-border cooperative project. His first objective is to improve the management and health of patients with complex rare diseases. Bringing together reference centres for rare diseases, universities, research centres, and patient support groups, RARENET offers a platform for the education and interaction by directly linking clinical treatment to the needs of patients. It provides resources such as patient information sheets, seminars, and training sessions for a greater level of information for health professionals and the general public.
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Oro-dental rare diseases and rare autoimmune diseases

In Europe a disease is defined as rare when it affects fewer than 1 in 2,000 people, however in total several million people are affected by rare diseases. The RARENET network brings together researchers, heath professionals, and patient support groups. Together RARENET concentrates on two types of diseases: rare diseases causing oro-dental anomalies (alterations in the number, shape, size, structure, eruption, and/or resorption of teeth) and auto-immune diseases including lupus (frequently affecting young women) or vasculitis, an inflammation of blood vessel walls.
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Recent news

18 11, 2016

Photos de la Fête de la Science 2016

RARENET était présent à la médiathèque Malraux de Strasbourg du 13 au 15 octobre pour la Fête de la Science et a accueilli près de 300 visiteurs !

18 11, 2016

Symposium Décembre 2016

Un premier symposium à Strasbourg en décembre

Il reste encore quelques jours pour s’inscrire au premier symposium consacré aux maladies auto-immunes rares et vascularites et aux agénésies dentaires multiples en présence de conférenciers internationaux. Il se déroulera les 7 et 8 décembre 2016 dans les locaux de la Faculté de [...]

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